Hollywood actor Colin Farrell has revealed that he and his former partner Kim Bordenave have made the emotional decision to transition their 21-year-old son James into a long-term care facility. James has been diagnosed with Angelman syndrome, a rare genetic condition that significantly impacts physical and cognitive development. The decision, Farrell explained, is a deeply personal but forward-looking step meant to ensure James continues to feel supported and connected throughout his life.
In a recent interview with Candis Magazine, the Irish actor opened up about the complexities behind this transition. “Some parents say they want to take care of their children by themselves and I completely understand and admire that,” Farrell said. “But what if something happens to me or to Kim? Who will care for James then?”
Farrell emphasized the urgency of having a plan in place for the future, explaining that in the absence of parental care, their son could be placed under state guardianship without their input. “If we don’t take this step now while we can still be involved and present in his life, we might lose the chance to shape where and how he lives,” he added.
Currently, Farrell and Bordenave are evaluating different long-term care facilities, hoping to find a place where James can lead a fulfilling and joyful life. They are seeking an environment that not only provides the necessary care but also nurtures a sense of belonging and connection for their son, who is nonverbal and requires lifelong support.
Beyond his personal journey, Farrell is also using this moment to raise awareness about the broader challenges faced by families of young adults with intellectual disabilities. He noted that support systems often dwindle once children with special needs reach adulthood. “At 21, the support essentially drops off. There are no more special education classes or tailored programs. These young adults often get left behind,” he said.
In response to these systemic issues, Farrell is launching the Colin Farrell Foundation, a new initiative dedicated to supporting individuals with intellectual disabilities. The foundation aims to create programs and advocate for policy improvements that ensure inclusive support for adults like James.
Angelman syndrome, which affects about 1 in 15,000 people, is usually diagnosed through genetic testing that identifies alterations in the UBE3A gene. Though it presents significant challenges, many individuals with the condition live long lives with the right care and support. Farrell hopes that through proactive choices and advocacy, James and others like him can live with dignity and joy.
